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NARCOLEPSY / SLEEP DISORDER / CATAPLEXY / BODY PARALYSIS
Here is a short summary of my daughters history. She was born with what we thought was a seizure disorder. When she would get upset and cry she would stiffen up and stop breathing we would give her mouth to mouth. even her brothers and sister would breathe for her if nessasary. When she was about 5 we were able to wean her from her anti seizure meds. At 6 she started sleeping all the time 18-20 hrs a day. We went to doctor after doctor had test after test no one could figure out what was wrong with her. When she was eight a cardiologist suggested that she be tested for narcolepsy. It took two more years to get her tested and diagnosed with it. Narcolepsy is a brain disorder that is thought to be a auto immune disorder where the body destroys the hyprecin cells in thr hypothalumus of the brain these cells secrete a nurotransmitter that causes us to be awake. She also has a condition called cataplexy. Which is a disorder that is often paired with narcolpesy in which when a person feels intense emotion or is startled will have a seizure-like reaction. When this happens the person experiences total body paralysis and will fall....they can be paralyzed for a few minutes up to 20 min or more. They are alert the whole time but are unable to speak or move during that time. She was on provigal 400mg Amitryptalyn 50 mg and effexor 150 mg the provigal helped her to stay awake t/o the day the ammytriptalyn helped her sleep and helped her control the cataplexy but caused her to be extremly moody and nasty. The effexor helped with the cataplexy and boosted the provigal for energy. WE started her on the [Mangosteen-Juice] we were disapointed that we didn't see any benefit right away. We gave her the [Mangosteen-Juice] for 3 mo and still didn't see much response and we decided to try it for one more month about a week into the 4th month she started to improve her teacher called me and asked me what I had given her. She was bouncing off the walls. (she usually slept through class) We have since weaned her off the amitriptalyn, her Provigal is 100mg occasionally for school or church, and the effexor is now down to 37.5mg I tried her with out the meds for two weeks and she did well. On just meds she was up for about 10 hrs a day...on [Mangosteen-Juice] and meds she was up about 16 hrs a day....on [Mangosteen-Juice] alone she was up 12 -14 hrs a day. Her attitude is great we fianlly have our daughter back now we face the challage of teaching her the things that she missed while she slept. She was asleep for 51/2 yrs and awake but not alert for another 6+mo now she is awake and alert. Thanks to [Mangosteen-Juice].
Kaye T.